I have attacks where I lose the ability to move one of my legs (the entire leg, it’s only once happened with both at the same time), there is a tingling, searing sensation, and it lasts ten to forty-five minutes. At first it started with my right leg, but now it’s both. I’m seventeen, and I’ve been having these symptoms for a little less than a year now, and they’ve been progressively getting worse. Let me know how it goes? Always here if you need me □ I’m still working, studying and raising my son and life is good. I have MS and have had the most incredible treatment. My dad had primary progressive MS and died from complications at the age of 35. I know it’s awful but even though your family members have a history of MS, don’t think it will be the same for you. At least I could then access treatment! And that’s at the heart of all this, the sooner you start the ball rolling, doctor-wise, the sooner you can get the help and advice you need. I know you went years ago and had the all clear but it may be time to go back and ask for another one? Even if it doesn’t show up MS, and I hope it doesn’t, it will at least pave the way to allow your doctor to explore other reasons for your symptoms?īelieve me, I went through hell and I was actually ‘happy’ to have a diagnosis at the end of it all. I’m really sorry to hear what you have been going through.įirst things first, freaking out silently is way more horrendous than going back to your doctor. One thing is certain though, where there is illness, you can be sure there are people out there making money off the back of it. And are we under pressure to fight back at all costs, rather than concentrate on disease modifying drugs and adjusting to a life with MS? Providing false hope through books, diets or remedies is cruel. I’m sure some of these books have merit, but MS is still an incurable disease. Fighting the Dragon: How I Beat Multiple Sclerosis.Talking Back to MS – How I Beat Multiple Sclerosis Using Low-Dose Naltrexone.The Hippy Guide to Eliminating Multiple Sclerosis (Sugar Diet Illness).Have a look at some of the books for sale about beating MS: By ‘denying’ him vitamin D, I had unwittingly increased his chances of developing MS. More worryingly, other websites chastised me for putting sun cream on my son. One admonished me for drinking diet Coke, whilst others offered amazing herbal cures or secrets to beating MS, if only I paid hundreds of pounds for the privilege. Friends were just as naive as me though – my inbox was flooded with links to various websites. I can laugh at these quizzes now, but if I had found them back then, would it have been a more serious matter? Would it have reassured me? Through trial and and a lot of errors, I eventually stuck to only two websites – The MS Society and the MS Trust. I admit, when my neurologist first diagnosed me with Clinically Isolated Syndrome, which may or may not lead to MS, then told me not to look for answers on the internet, the first thing I did when I got home was pour myself a stiff drink, boot up the computer and surf. Based on your answers, you don’t fit the diagnostic criteria for the screened disease.’ The website’s Androctor Anna, however, gave me unexpected news – ‘ I screened you for multiple sclerosis. I took the quiz, with the knowledge I have already been diagnosed with highly-active relapsing MS. A tweet went round recently with a link to a website that promised to diagnose you with MS or not, just by answering 12 simple questions ( here). There’s a good reason our neurologists and MS nurses warn us not to google MS.
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